Rachel Kennedy – Abstract

P14  Can retrospective report of falls provide an accurate snapshot of falling compared to prospective reporting in children and adolescents with Charcot-Marie-Tooth disease?

Kennedy RA[1,2,3], McGinley JL[2,3], Ryan MM[1,2,3], Paterson, KL[3] and Carroll K[1,2]

  1. Department of Neurology, The Royal Children’s Hospital, Parkville, Australia
  2. Murdoch Children’s Research Institute, Parkville, Australia
  3. The University of Melbourne, Parkville, Australia

A six-month prospective falls study in paediatric Charcot-Marie-Tooth disease (CMT) reported falls incidence 33 times greater than typically developing children with a large number of injurious falls [1]. Whilst prospective studies are the gold standard of reporting falls [2], and provide important details of falls incidence and consequences, they are time- and labour-intensive, and burdensome on participants and families. This study aimed to determine if retrospective reporting of falls in the clinical setting is comparable to prospective reporting. Twenty-five children aged 4-17 years (mean 11.4, SD 3.5) with CMT participated in a six-month prospective falls study [1]. Retrospective report at the commencement of the prospective study included falls frequency, mechanism, location, surface type and injuries. Falls frequency was comparable between the two methods when divided into categories: non-fallers (retrospective 16%; prospective 12%), fallers (1-2 falls; retrospective 36%; prospective 44%) and recurrent fallers (>2 falls; retrospective 48%; prospective 44%). Children who fell infrequently, under-estimated falls recall from 6 months beforehand. Tripping was the most common mechanism reported both retrospectively (56%) and prospectively (76%). Most injuries sustained were cuts and grazes (retrospective 68%; prospective 48%). Interestingly, children under-estimated falls in home and community environments, and on flat surfaces (indoors and outdoors) when recalling falls history, and over-estimated the number of falls in the playground. Retrospective falls reporting is meaningful to ascertain fallers from non-fallers, mechanism of falls and injuries sustained in paediatric CMT. Reporting of falls in the outpatient clinic is valuable in determining the functional consequences of neuromuscular weakness.

  1. Kennedy, R.A., et al., Falls in paediatric Charcot-Marie-Tooth disease: a six-month prospective cohort study. Arch Dis Child, 2018 (under review, May 2018).
  2. Lamb, S.E., et al., Development of a Common Outcome Data Set for Fall Injury Prevention Trials: The Prevention of Falls Network Europe Consensus. J Am Geriatr Soc, 2005. 53(9): p. 1618-1622.